Through our Network, the children of Western Canada and their families can have access to first-rate cardiac services. We are here to help our patients and their families with information and resources about children's heart disease and care.
Family Friendly Websites:
http://wcchn.congenital.org (WCCHN Ped Heart Resource)
www.cincinnatichildrens.org/svc/prog/heart/default.htm (Cincinnati Children's Hospital)
www.tchin.org (Congenital Heart Information Network)
www.vchc.ca (Winnipeg Children's Hospital - Variety Children's Heart Centre)
www.lhm.org.uk (Little Hearts Matter)
www.vcfs.org (Velo-Cardio-Facial Syndrome Educational Foundation Inc)
http://info.med.yale.edu/intmed/cardio/chd/contents/index.html (Yale University)
http://www.cachnet.org/managing_recomp3.html#Section%20XI (Adults with Congenital Heart Defects - management)
http://www.chasekids.org (Chase Kids)
http://www.heartbeats.ca (Heart Beats Children's Society of Calgary)
http://www.rush.edu/rumc/page-1099918801842.html (Rush University - Pediatric Cardiovascular Services, Chicago)
http://cardserv.hosts.jhmi.edu/pedcard/ (John Hopkins University in Maryland, Cardiology)
www.childrensheartnetwork.org (Children's Heart Network, BC)
http://www.cachnet.org/ (Canadian Adult Congenital Heart Network)
http://www.mayo.edu/cv/wwwpg_cv/congenit/chcguide.htm (Mayo Adult Congenital Heart Disease Clinic)
http://www.teenshealth.org (Teens Health)
http://www.transplant.bc.ca (British Columbia Transplant Society)
http://www.rchc.rush.edu (Rush Children's Heart Center)
http://www.noonansyndrome.org (The Noonan Syndrome Support Group Inc.)
www.aboutkidshealth.ca (About Kids Health - Trusted answers from The Hospital for Sick Children)
www.sickkids.ca (The Hospital for Sick Children, Toronto)
www.rch.org.au (Royal Children's Hospital, Melbourne, Australia)
www.babyheartspress.com (Baby Hearts Press - Real Stories of Hope & Healing, Anna Jaworski's Website - Author of 'A Mother's Heart')
www.carepages.com/stollery (Stollery CarePages)
"Granting Children's Wishes" Groups across Canada Websites:
http://www.childrenswish.ca (Children's Wish Foundation of Canada)
http://www.makeawish.ca (Make a Wish Canada)
http://www.therainbowsociety.com (The Rainbow Society)
http://www.rainbowsociety.ab.ca (The Rainbow Society of Alberta)
http://www.sunshine.ca (Sunshine Foundation of Canada)
http://www.tenderwishes.org Tender Wishes Foundation)
Resourceful Books:
"It's My Heart", by the Children's Heart Foundation
http://www.childrensheartfoundation.org (Children's Heart Foundation)
"Heart and Soul Book", by B.C. Children's Hospital
"Heart Defects in Children: What Every Parent Should Know", Cheryl Wild, R.N., B.S.N.
"Changed by a Child", by Barbara Gill
"Heart of a Mother"
"My Brother Needs an Operation"
"Hypoplastic Left Heart Syndrome: A Handbook for Parents"
"Homeschooling my HLHS Child: One Mother's Experience"
"HLHS After the Fontan: One Mother's Experience"
"Newborn Intensive Care: What Every Parent Needs to Know"
"Early Passage: A Journal for Parents of Premies"
"Kara Mia"
"My Teen Angel"
"Kids with Heart Parent Information Packet"
"Heart Defects in Children: What Every Parent Should Know"
"Heart of a Child"
"To Mend a Broken Heart"
"Every Parent's Nightmare"
"My Heart Story"
"Matty's Heart"
"Kids' Discover Heart - Dec 1996"
"A Night Without Stars"
"Young People & Chronic Illness"
"Dr. Mani's Fontan Report"
"Jeff's New Pacemaker"
"The Parent's Guide to Children's Congenital Heart Defects: What They Are, How to Treat Them, How to Cope With Them", by Gerri Freid Kramer, Shari Maurer
"Heart Defects in Children: What Every Parent Should Know", by Cheryl J. Wild, Michael J. Neary
"The Heart of a Mother", by Anna Marie Jaworski (Preface), Judy Norwood (Introduction)
"The Heart of a Child: What Families Need to Know About Heart Disorders in Children", by Edward B. Clark, Carleen Clark, and Catherine A. Neill (Editors) A Johns Hopkins Press Health Book
"Congenital Heart Disease: A Deductive Approach to Its Diagnosis", by Burton W. Fink
"Your Child in the Hospital: A Practical Guide for Parents", by Nancy Keene, Rachel Prentice, and Linda Lamb (Editor)
"Curious George Goes to the Hospital", by Hans Augusto Rey, Margaret Rey
"Cardiac Kids: A Book for Families Who Have a Child with Heart Disease", by Vicci Elder, Annie King (Illustrator)
